Autism spectrum

My brain can’t tune things out: a story about habituation

Habituation.

It’s a super-duper important neurological process that most people take for granted. In fact, I bet you didn’t even know you did a thing called habituation.

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If you google the definition of habituation, you most likely wonder who’s responsible for such a thing. Here’s google’s definition:

the diminishing of a physiological or emotional response to a frequently repeated stimulus.

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Ok, ok, we aren’t that brainless. We know what the definition is saying, but, we need to know what it means and how it applies to our beautiful selves.

So, what the heck is habituation?

Picture this: you are in the kitchen preparing a delicious lunch. Outside, someone is mowing their lawn, and cars are rumbling down the street. A bird is squawking; your child is playing in the next room; the television is on. You’re wearing fuzzy slippers and there is a bright light above you. You, however, are able to concentrate on your recipe.

You probably didn’t notice, but you can no longer hear the lawn mower, or your child playing, or the cars, or the birds. You don’t feel the fuzzy slippers on your feet and you aren’t aware of the light shining on you.

Actually, you do hear, feel, and see them, but you are able to block them out and focus on the task at hand. But if you pause and tune in, all that stuff is still there. Must be magic, you think.

Alas, yer not a wizard, Harry. It’s not magic; it’s habituation.

Here’s my less fancy definition of habituation: the brain’s ability to block out stuff by becoming used to it being there.

Your brain can stop paying attention to things that aren’t important in the moment. Hearing the birds outside or the hum of passing cars is not important, so the brain filters them out of your conscious awareness. Notice the word “habit” neatly tucked into “habituate.” Your brain makes a habit of recognizing and tuning out certain stimuli.

What happens when your brain doesn’t habituate well?

Perhaps the most notable side effect is anxiety. When your brain doesn’t have the ability to adjust to a steady stream of information, it reacts by constantly sending up red flags. If it doesn’t know which information is new and which information is not new, it cannot tune out anything because *everything* is new and important and needs to be addressed NOW.

More importantly, it’s something that many people with Sensory Processing Disorder – as well as other neurologically-based conditions like Autism and Schizophrenia – struggle to do.

That’s right friends, I can’t habituate. Or at least, I really stink at it.

Why does your brain stink at habituating?

Truth is, we aren’t quite sure why people with certain neurological conditions can’t habituate. Researchers know that habituation involves the amygdala, the nervous system, the prefrontal cortex, the limbic system, and the vagus nerve. And we know that those systems don’t always function like they’re supposed to in individuals with neurological disorders. Studies have been done with children with autism to test their habituation abilities, and unsurprisingly, brain scans show that they are unable to “get used to” any stimuli no matter how many times they are exposed to it.

People like me (with SPD) struggle to habituate because the basic stimuli we receive every second of the day has a challenging time getting through our processing system. We end up in a state of hyper-arousal and cannot tune out stimuli.

If you have SPD, you will probably not stop noticing that tag in your shirt. You cannot ignore it. Forcing yourself to wear it and get used to it is ultimately useless. (I know this because I’ve read several studies about people with conditions that compromise the ability to habituate, and exposure therapy has little benefit.)

When I wear jewelry, I do not stop feeling it on me. When I wear a ring, it’s as if my brain is only hearing this:

When I’m around a barking dog, I will jump and respond with panic every time the dog barks. My brain will not get used to the barking. If the dog barks 32 times, I will startle and panic 32 times, over and over, until I start to cry. Yes, it is embarrassing, thank you.  No amount of me standing there forcing myself to listen to it will reduce my brain’s reaction to the sound. Yes, I have field-tested this theory only to yield the same crappy results every time. Look, I made a graph:

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It’s unbearable to be aware of everything around you (or on you) all the time. This is why people with sensory issues are quickly exhausted or reduced to tears after a short time in an overwhelming environment. It’s like our brain is fried from constant processing.

How do I improve my brain’s crappy habituation skills?

Considering that exposure therapy has been shown to have little effect on treating poor habituation skills, there’s gotta be another way (cue that song “we know the way” from Moana). Up until right now writing this blog post, I had no idea what that was. I dove – well, jumped carefully, I don’t like diving – into the internet to find out how to fix this habituation situation.

(Now I’m losing it because I just realized habituation situation is so neat-o and I should’ve used it sooner.)

Some time later…

My research has concluded that there is no straight-forward way to help a brain that doesn’t habituate well. Actually, right now, the best course of action is a sort-of backdoor approach. For the sensory-stressed, the best course of action is to reduce sensory reactivity in other areas of life and practice stress reduction techniques.

Confession: I am now cringing as I type this because this was not the answer I was looking for. It’s basically saying, “MAYBE IF YOU CALM DOWN A BIT, YOUR BRAIN WILL FOLLOW ALONG, YES?? We have no idea. That’s our best guess because the brain is a big ‘ol mystery.” No! That’s not what I want to hear. I was hoping for something like, “consume more lemons” or “strengthen the muscles of the lower back.” Although I don’t know why either of those would have anything to do with treating a poor ability to habituate, but at this point, I’m sure most of us are willing to try ANY approach that doesn’t involve the words, “just relax.”

It seems to be a trend that researchers are consistently vexed by the neurodiverse, and will probably be for the rest of history (must we always be so lucky??). They tend you use “just relax” as a blanket solution to fix the problems of autism, epilepsy, PTSD, and more. I really wish they would get a new blanket.

While being terrible at habituating information isn’t going to kill us, it certainly isn’t going to do us any favors either.

And there you have it; that’s habituation the habituation situation. I have no delightful or uplifting way in which to end this. Let me briefly list some good things on my mind:

-Thanksgiving’s fast approaching

-It’s almost bedtime

-I’m going to make tea after this

Alright, that’s about it.  Depression is a wondrous thing, folks.

xo kelly

What the heck is Sensory Processing Disorder?

What the heck is Sensory Processing Disorder (SPD)? Also called Sensory Integration Disorder, or, as I call it, “My brain hurts from all the noises and lights and junk. I can’t function or anything, so I’m just gonna go to bed.”

I have found that nobody knows what SPD is, or just how deeply it can impact a person’s life. So darn it all! I’m making a post about it.

First, what the heck is sensory processing?

All of our senses are processed through our nervous system. That is, information is collected by our senses and sent to the brain where it is processed and sorted. Once this is done, your brain tells you how to respond to that information.

Second, what the heck is sensory processing disorder?

The disorder part comes into play when the act of sensory processing goes haywire. The sensory information gathered by the nervous system is not correctly interpreted by the brain, which results in numerous symptoms and behaviors.

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What happens then?

Well my friends, if your brain does not know how to understand the information that it is being fed, you’d better believe that your response to it will also be quite messed up.

For people with sensory disorders, the resulting behaviors from a malfunctioning sensory system can vary tremendously. For some, they turn-inward and become still and quiet. For others, they lash out and have a loud, head-banging, arm-flailing meltdown.

Personally, my body shuts-down. I cannot talk (or make sense when I do speak), or walk straight. I am disoriented, irritable, crying, and feeling completely detached and ill. The environment becomes simply too much to process, so my brain tells me to just turn off for a while.

What’s it like living in a sensory world?

As you can imagine, living with SPD is, shall we say, challenging. All aspects of living on planet Earth require that you have a functioning sensory system. This is especially true in Westernized societies where sensory stimulation is considered fun and enjoyable. Of course, it becomes less fun and less enjoyable when your brain cannot process sensory signals the way they should. The world becomes unexpected, chaotic, frightening, and confusing. Basic aspects of life such as taking a shower, cooking dinner, seeing friends, working, going to school, watching television, or eating become a battle.

Imagine showering if the feeling of water dripping on you made you want to run for your life, or the water temperature feels painfully cold for you, but to everyone else and their brother, it feels fine.

Imagine going to school where the bus is bumpy and the radio is painfully loud, and the seats are shiny and feel different and ugly on your skin. The children are noisy and they move fast, and the teacher gives you white paper that hurts your eyes to look at. Your hand won’t hold the pencil, and the lines and words are jumping and moving. In gym, you are terrified of climbing the cargo net but you love crashing yourself into the blue cushy mats. In art, the thought of finger-painting makes you cry, but you love cutting paper or looking at shiny scissors.

Imagine you can’t get a job because the store has fluorescent lights and the customers are loud, and have screaming children. Your job requires you complete tasks for countless hours in a sensory-filled environment. Your clothes are itchy and too tight. The feeling of denim or fleece is awful, but you have to wear it. There’s a tag in the shirt that makes you want to scream.

Imagine you try to eat dinner but the smell of food makes you gag, and the feeling of the food in your mouth is unbearable. But you love to touch it with your fingers because your body tells you that that makes more sense, and it doesn’t hurt.

WHAT I’VE LEARNED…

Here I am now, age 22. My sensory disorder still plagues my life. When I reached my teen years, I found that therapy to help me cope with this disorder was virtually non-existent. They assumed that because I was 13 years old, I was able to do all the therapy on my own. I find this disturbing. It’s not like sensory problems go away. They can be managed and treated, but as of right now, this problem is not curable.

Even worse is the fact that the majority of people – both the general public and professionals – are either blissfully unaware of sensory disorders, or they don’t believe in them at all. Yes, you heard me. Many “professionals” do not think sensory problems exist.

When I ask people if they know about SPD, they respond either “no,” or the conversation goes like this:

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Yeah like karate. UGH. BOW TO YOUR SENSEI.

SOME MORE THINGS I’VE LEARNED…

SPD is unrecognized in many people, aka: loads of people living with this disorder go undiagnosed. These people – young and old – have struggled their entire lives being deeply impacted by the challenges of living with sensory issues. I also feel that the sensory components in autism are severely neglected. In fact, I believe sensory problems are a huge factor in autism and the reason why autistic people behave the way they do. Autism is not just about communication problems.

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People generally don’t know much about autism (like the gentlemen in the illustration above) even though a huge number of the population live with this neurological disorder.

When researching autism, I found hardly any information about the connection to sensory problems. Everything was focused on communication and social skills. I recently read Temple Grandin’s newest book The Autistic Brain: Thinking Across the Spectrum. I was delighted to FINALLY see that she too noticed a huge lack of discussion about sensory problems in autistic people. Temple Grandin, you stole my hypothesis!!

I believe autistic behaviors stem from sensory overload (or under-load). Meaning, autistic people behave the way they do (social problems, little to no communication, meltdown, stimming, detachment/zoning out, need for routine, etc) as a way for their mind/body to cope with the sensory processing malfunction.

THIS, I feel is the most neglected part of autism, and it is neglected because sensory processing disorders are neglected across the board.

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Any thoughts/comments on SPD or related issues, leave a reply below. I love to see feedback or discussion! 🙂

xoxo kelly